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  • Home
  • News
  • Conferences
    • 4th Meeting 2017
    • 3rd Meeting 2017
    • 2nd Expert Meeting
    • 1st Expert Meeting
  • parents
  • professionals
  • about
    • The foundation
    • Global network
    • Mission Statement
    • Board members
    • Partners
  • patient network
  • Publications
  • contact us