The RSV Patient Network is a network of parents whose children were hospitalised with RSV infection during infancy. We are committed to increasing public awareness of RSV (Respiratory Syncytial Virus). Most notably in our efforts to achieve this goal, we have established a Patient Advisory Board, where we are involved in various RSV research projects representing the patient perspective. We use our hands-on experience as parents of RSV patients to make an independent and valuable contribution to the relevance, quality and results of RSV research. Click here to find more information about our mission.
About the RS Virus The Respiratory Syncitial Virus - RSV or RS Virus in short - is a highly contagious virus. By the age of 2, every person has been infected with the virus. An RSV infection can be dangerous for groups that are more at risk, such as preterm babies and older adults. |
Our activities To fulfill our mission, we organise activities through several channels, such as webinars for parents, and the annual RSV Awareness Week. Moreover, some members of the RSV Patient Network is active in the (International) Patient Advisory Board, representing the patients' perspective in scientific studies. |
RSV research projects We represent the patient perspective in scientific research and make sure the voice of the patient is heard in a medical scientific setting via constructive dialogue with researchers. On this page, you can find projects where the Patient Advisory Board is active, as well as other interesting studies. |
Personal stories A severe infection with the RS Virus can be very scary, both for the infected child or grown-up, as well as for parents and other family. Sharing your story - and reading other people's experience - can help in enduring and processing these difficult times. |
What can I do? You can subscribe to our mailing list by filling out the form below, and join us on social media to stay up to date on our activities. We are also expanding our international network of the Patient Advisory Board (PAB). Click here if you are interested in joining. |
Contact us If you have any questions or comments, you can contact us via email. Also, we are active on Instagram, Facebook, LinkedIn and Twitter. Join us via the icons below and we can stay in touch. |
MissionRSV Patient Network wants everybody to know about RSV. The virus is known to affect older adults, but the highest burden is in young children, aged below 2 years old. Therefore, we feel that RSV belongs right there on the list of childhood diseases that everybody knows. Young parents should be able to assess the risks for their baby, know what preventive measures to take and how to recognise a severe infection in time. We were all very shocked when our children were hospitalised with a serious viral infection which we had never heard of before. During the winter months hospital beds are filled with babies and older adults with RSV. It is high time to give more attention to this unknown virus. |
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We participate in several advisory committees as independent sounding board for researchers. We represent the patient perspective in scientific research and make sure the voice of the patient is heard in a medical scientific setting via constructive dialogue with researchers. We especially work closely with researchers of Wilhelmina Children’s Hospital in Utrecht (www.hetwkz.nl). This hospital has an active RSV research group led by Professor Louis Bont. They are involved in many medical scientific projects studying prevention and treatment of RSV infections and the virus’ burden of disease on society.
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Subscribe to our mailing list below, and join us on social media to stay up to date on our activities.
We are also looking to expand our international network of the Patient Advisory Board (PAB). Click here if you are interested in joining the PAB. Subscribe to our mailing list
We will use your email address to inform you about our news and activities. Your email address will not be provided to third parties.
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