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We are proud to share the published article by the RSV Patient Advisory Board (PAB), on the importance of involving parents of children who have suffered from RSV in research, policy making and awareness raising. Our PAB is a pioneer in the field of patient involvement in RSV research. Its establishment and development of has demonstrated that equal partnership and commitment from both patient representatives and researchers are essential to benefit the unique perspective of the parents of children who have had RSV. Involving these representatives as partners has led to the establishment of a reliable and independent advisory group for researchers, and many new initiatives to improve awareness about RSV among parents, professionals, and the general public.
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RSV booklet European Foundation for the Care of Newborn Infants (EFCNI) 
This booklet, created by the EFCNI provides further information about RSV in order to know which steps will be helpful in decreasing the risk for your baby (and yourself) to get an RSV infection. |
